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INTEREST: Manga Artist Draws Autobiographical Essay About Experience with Parkinson's Disease




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Basroil



Joined: 29 Oct 2003
Posts: 69
Location: North Carolina
PostPosted: Thu Dec 22, 2016 8:44 pm Reply with quote
My mother has Parkinson's for 19 years now, it was diagnosed almost as soon as she described the symptoms to her doctor. I can't believe it would take seven years for a diagnosis in Japan. Unbelievable, is it a rare disease for Japanese to get?
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Suena



Joined: 27 May 2012
Posts: 289
PostPosted: Thu Dec 22, 2016 9:04 pm Reply with quote
Basroil wrote:
My mother has Parkinson's for 19 years now, it was diagnosed almost as soon as she described the symptoms to her doctor. I can't believe it would take seven years for a diagnosis in Japan. Unbelievable, is it a rare disease for Japanese to get?

I don't know about illness rates, but I know doctors can sometimes have their own prejudices about people being "too young" to get certain diseases, and won't even consider that a person might have it. Confused
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ChrissyC



Joined: 17 Jun 2015
Posts: 545
PostPosted: Thu Dec 22, 2016 10:15 pm Reply with quote
Basroil wrote:
My mother has Parkinson's for 19 years now, it was diagnosed almost as soon as she described the symptoms to her doctor. I can't believe it would take seven years for a diagnosis in Japan. Unbelievable, is it a rare disease for Japanese to get?


I read often about how many areas in Asia are ignorant of many diseases (being apart of a rare asian ethnic group, I have many anecdotal stories), especially mental illnesses (mental illnesses aren`t recognized and are seen as "personal problems" not a problem that the individual has no control over).

Parkinson`s has noticeable effects but being somewhere that isn`t widely informed about such, many would probably say something similar to what the doctors had said to the mangaka above; mistaking Parkinsons as someone being physically nervous.
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Mr. Oshawott



Joined: 12 Mar 2012
Posts: 6773
PostPosted: Fri Dec 23, 2016 1:43 am Reply with quote
Seven years it took before the doctors found out that Ms. Shimazu-san was under the severe effects of Parkinson's...I can't imagine the agony she went through after spending those years not being diagnosed. Sad
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simona.com



Joined: 20 Apr 2007
Posts: 330
Location: Tokyo
PostPosted: Sat Dec 24, 2016 3:02 pm Reply with quote
if you got anything else than cancer, Japanese hospitals pretty much suck.
Doctors are way too rigid in their archaic positions and can't see the whole picture.

I am not surprised - albeit still very appalled - it took so long to get a diagnosis.
I, for one, never got one for my peripheral nervous system problem, so I'm just dealing with it my way [i.e. seeing Italian doctors instead.]
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CrescentWolf



Joined: 03 Dec 2016
Posts: 65
Location: Florida
PostPosted: Sat Dec 24, 2016 6:30 pm Reply with quote
How horrible that it took so long for a proper diagnosis.

I was diagnosed with Tourette's Syndrome in fifth grade, and while I have it under control now (for the most part) the "ticks" got to be dreadfully painful. I'd tear my fingers apart from picking at them, I could hardly move my wrists and hands from rotating and twitching them all the time, and my throat hurt from all the vocal "ticks" and stupid sounds I'd make.

The worst part was I couldn't really do anything about it, it wasn't until I found the right doctor who knew what he was talking about and truly cared that I found relief.

So I pray now that she too can find find the right doctor and find relief of her own.
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mrsatan



Joined: 06 Jul 2005
Posts: 909
Location: Olympia, WA, USA
PostPosted: Mon Dec 26, 2016 10:24 pm Reply with quote
When I was studying in Japan, our school doctor was a real character; something from a different era. He was an little old man that would chain-smoke cigarettes, right there indoors in the school infirmary. Seeing that made me lose all confidence!

I got sent to a real hospital when I got a migraine though, and they fixed me right up fast.
If they ever give you a thermometer in Japan, don't put it in your mouth. They'll look at you like you're a moron. They go under your arm.
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omiya



Joined: 21 Sep 2011
Posts: 1826
Location: Adelaide, South Australia
PostPosted: Tue Dec 27, 2016 7:52 pm Reply with quote
simona.com wrote:
if you got anything else than cancer, Japanese hospitals pretty much suck.


It depends... having had a twisted section of my small intestine removed when in Tokyo I found the treatment and care excellent.
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simona.com



Joined: 20 Apr 2007
Posts: 330
Location: Tokyo
PostPosted: Wed Dec 28, 2016 6:48 am Reply with quote
omiya wrote:


It depends... having had a twisted section of my small intestine removed when in Tokyo I found the treatment and care excellent.


good for you, you were lucky Wink
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omiya



Joined: 21 Sep 2011
Posts: 1826
Location: Adelaide, South Australia
PostPosted: Thu Dec 29, 2016 3:27 pm Reply with quote
simona.com wrote:
good for you, you were lucky Wink


The only downside to being taken ill was missing one orchestral concert and two Yuki Kajiura concerts, on the upside I saw a different part of Japanese life including the care and generosity of those around me.

I wonder if there are any support groups in Japan for those with Parkinson's Disease?
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